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Talking the same language on patient empowerment-Development and content validation of a taxonomy of self-management interventions for chronic conditions
Talking the same language on patient empowerment-Development and content validation of a taxonomy of self-management interventions for chronic conditions
Version 1.1 Approuvé- Type de document
- EXTERNAL_DOCUMENT
- Extension
- png
- Taille
- 130 Ko
- Modifié
- 21/10/22 13:24 par mir mir
- Créé(e)
- 21/10/22 13:22 par mir mir
- Localisation
- PUBLIC
- Notations
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Version 1.1Par mir mir, sur 21/10/22 13:24Log Pas de changement
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Version 1.0Par mir mir, sur 21/10/22 13:22Log Pas de changement
Résumé
Context
The literature on self-management interventions (SMIs) is growing exponentially, but it is characterized by heterogeneous reporting that limits comparability across studies and interventions. Building an SMI taxonomy is the first step towards creating a common language for stakeholders to drive research in this area and promote patient self-management and empowerment.
Objective
To develop and validate the content of a comprehensive taxonomy of SMIs for long-term conditions that will help identify key characteristics and facilitate design, reporting and comparisons of SMIs.
Methods
We employed a mixed-methods approach incorporating a literature review, an iterative consultation process and mapping of key domains, concepts and elements to develop an initial SMI taxonomy that was subsequently reviewed in a two-round online Delphi survey with a purposive sample of international experts.
Results
The final SMI taxonomy has 132 components classified into four domains: intervention characteristics, expected patient/caregiver self-management behaviours, outcomes for measuring SMIs and target population characteristics. The two-round Delphi exercise involving 27 international experts demonstrated overall high agreement with the proposed items, with a mean score (on a scale of 1-9) per component of 8.0 (range 6.1-8.8) in round 1 and 8.1 (range 7.0-8.9) in round 2.
Conclusions
The SMI taxonomy contributes to building a common framework for the patient self-management field and can help implement and improve patient empowerment and facilitate comparative effectiveness research of SMIs.
Patient or public contribution.
Patients’ representatives contributed as experts in the Delphi process and as partners of the consortium.
Le projet COMPAR-EU a été financé par le programme de recherche et d'innovation Horizon 2020 de l'Union européenne dans le cadre de la convention de subvention n° 754936.
Veuillez noter qu'il s'agit de la version bêta de la plateforme COMPAR-EU. Il comprend désormais les résultats complets concernant le diabète et, au cours de l'été 2022, les résultats concernant l'obésité, la BPCO ainsi que l'insuffisance cardiaque seront complétés. La plateforme sera également étendue et améliorée pendant les mois à venir.