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Talking the same language on patient empowerment-Development and content validation of a taxonomy of self-management interventions for chronic conditions
Talking the same language on patient empowerment-Development and content validation of a taxonomy of self-management interventions for chronic conditions
Versie 1.1 Goedgekeurd- Documenttype
- EXTERNAL_DOCUMENT
- Extensie
- png
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- 130 kB
- Gewijzigd
- 21-10-22 13:24 door mir mir
- Gemaakt
- 21-10-22 13:22 door mir mir
- Locatie
- PUBLIC
- Waarderingen
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Versie 1.1Door mir mir, over 21-10-22 13:24Geen wijzigingslogboek
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Versie 1.0Door mir mir, over 21-10-22 13:22Geen wijzigingslogboek
Samenvatting
Context
The literature on self-management interventions (SMIs) is growing exponentially, but it is characterized by heterogeneous reporting that limits comparability across studies and interventions. Building an SMI taxonomy is the first step towards creating a common language for stakeholders to drive research in this area and promote patient self-management and empowerment.
Objective
To develop and validate the content of a comprehensive taxonomy of SMIs for long-term conditions that will help identify key characteristics and facilitate design, reporting and comparisons of SMIs.
Methods
We employed a mixed-methods approach incorporating a literature review, an iterative consultation process and mapping of key domains, concepts and elements to develop an initial SMI taxonomy that was subsequently reviewed in a two-round online Delphi survey with a purposive sample of international experts.
Results
The final SMI taxonomy has 132 components classified into four domains: intervention characteristics, expected patient/caregiver self-management behaviours, outcomes for measuring SMIs and target population characteristics. The two-round Delphi exercise involving 27 international experts demonstrated overall high agreement with the proposed items, with a mean score (on a scale of 1-9) per component of 8.0 (range 6.1-8.8) in round 1 and 8.1 (range 7.0-8.9) in round 2.
Conclusions
The SMI taxonomy contributes to building a common framework for the patient self-management field and can help implement and improve patient empowerment and facilitate comparative effectiveness research of SMIs.
Patient or public contribution.
Patients’ representatives contributed as experts in the Delphi process and as partners of the consortium.
Het COMPAR-EU project heeft financiering ontvangen van het Horizon 2020 onderzoeks- en innovatieprogramma van de Europese Unie in het kader van subsidie overeenkomst nummer 754936.
Houd er rekening mee dat dit de bètaversie van het COMPAR-EU-platform is. Het bevat nu de voltooide resultaten voor Diabetes Type 2 en gedurende de zomer van 2022 zullen de resultaten voor obesitas, COPD en hartfalen worden voltooid. Ook wordt het platform de komende maanden uitgebreid en verbeterd.