Ruta de navegación
Documentos y multimedia
Self-management interventions for adults living with Chronic Obstructive Pulmonary Disease (COPD)- The development of a Core Outcome Set for COMPAR-EU project
Self-management interventions for adults living with Chronic Obstructive Pulmonary Disease (COPD)- The development of a Core Outcome Set for COMPAR-EU project
Versión 1.1 Aprobado- Tipo del documento
- EXTERNAL_DOCUMENT
- Extensión
- png
- Tamaño
- 120 KB
- Modificado
- 21/10/22 13:44 por mir mir
- Creado
- 21/10/22 13:43 por mir mir
- Localización
- PUBLIC
- Valoraciones
-
-
Versión 1.1Por mir mir, en 21/10/22 13:44Registro sin cambios
-
Versión 1.0Por mir mir, en 21/10/22 13:43Registro sin cambios
Resumen
Background: A large body of evidence suggests that self-management interventions (SMIs) may improve outcomes in chronic obstructive pulmonary disease (COPD). However, accurate comparisons of the relative effectiveness of SMIs are challenging, partly due to heterogeneity of outcomes across trials and uncertainty about the importance of these outcomes for patients. We aimed to develop a core set of patient-relevant outcomes (COS) for SMIs trials to enhance comparability of interventions and ensure person-centred care.
Methods: We undertook an innovative approach consisting of four interlinked stages: i) Development of an initial catalogue of outcomes from previous EU-funded projects and/or published studies, ii) Scoping review of reviews on patients and caregivers’ perspectives to identify outcomes of interest, iii) Two-round Delphi online survey with patients and patient representatives to rate the importance of outcomes, and iv) Face-to-face consensus workshop with patients, patient representatives, health professionals and researchers to develop the COS.
Results: From an initial list of 79 potential outcomes, 16 were included in the COS plus one supplementary outcome relevant to all participants. These were related to patient and car knowledge/competence, self-efficacy, patient activation, self-monitoring, adherence, smoking cessation, COPD symptoms, physical activity, sleep quality, caregiver quality of life, activities of daily living, coping with the disease, participation and decision-making, emergency room visits/admissions and cost effectiveness.
Conclusion: The development of the COPD COS for the evaluation of SMIs will increase consistency in the measurement and reporting of outcomes across trials. It will also contribute to more personalized health care and more informed health decisions in clinical practice as patients’ preferences regarding COPD outcomes are more systematically included.
El proyecto COMPAR-EU ha recibido financiación del programa de investigación e innovación Horizont 2020 de la Unión Europea en virtud del acuerdo de subvención nº 754936.
Tenga en cuenta que ésta es la versión beta de la plataforma COMPAR-EU. Ahora incluye los resultados completos para Diabetes y durante todo el verano de 2022 se completarán los resultados para Obesidad, EPOC e Insuficiencia Cardíaca. La plataforma también se ampliará y mejorará en los próximos meses.