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Talking the same language on patient empowerment-Development and content validation of a taxonomy of self-management interventions for chronic conditions
Talking the same language on patient empowerment-Development and content validation of a taxonomy of self-management interventions for chronic conditions
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- 21.10.22 13:24 von mir mir
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- 21.10.22 13:22 von mir mir
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Version 1.1Von mir mir, am 21.10.22 13:24Kein Änderungsprotokoll
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Version 1.0Von mir mir, am 21.10.22 13:22Kein Änderungsprotokoll
Kurzfassung
Context
The literature on self-management interventions (SMIs) is growing exponentially, but it is characterized by heterogeneous reporting that limits comparability across studies and interventions. Building an SMI taxonomy is the first step towards creating a common language for stakeholders to drive research in this area and promote patient self-management and empowerment.
Objective
To develop and validate the content of a comprehensive taxonomy of SMIs for long-term conditions that will help identify key characteristics and facilitate design, reporting and comparisons of SMIs.
Methods
We employed a mixed-methods approach incorporating a literature review, an iterative consultation process and mapping of key domains, concepts and elements to develop an initial SMI taxonomy that was subsequently reviewed in a two-round online Delphi survey with a purposive sample of international experts.
Results
The final SMI taxonomy has 132 components classified into four domains: intervention characteristics, expected patient/caregiver self-management behaviours, outcomes for measuring SMIs and target population characteristics. The two-round Delphi exercise involving 27 international experts demonstrated overall high agreement with the proposed items, with a mean score (on a scale of 1-9) per component of 8.0 (range 6.1-8.8) in round 1 and 8.1 (range 7.0-8.9) in round 2.
Conclusions
The SMI taxonomy contributes to building a common framework for the patient self-management field and can help implement and improve patient empowerment and facilitate comparative effectiveness research of SMIs.
Patient or public contribution.
Patients’ representatives contributed as experts in the Delphi process and as partners of the consortium.
Das COMPAR-EU-Projekt wurde durch das Forschungs- und Innovationsprogramm Horizont 2020 der Europäischen Union unter der Fördervereinbarung Nr. 754936 gefördert.
Sie enthält jetzt die vollständigen Ergebnisse für Diabetes, und im Laufe des Sommers 2022 werden die Ergebnisse für Adipositas, COPD und Herzinsuffizienz vervollständigt. Die Plattform wird auch in den nächsten Monaten erweitert und verbessert.